Eddie was diagnosed with Spinal Muscular Atrophy at age 2 and was given 5 years to live. He defied all odds.
Eddie has been using a wheelchair since the age of seven, yet he has not let his condition hold him back but rather used it as an opportunity to influence policy and also how the world looks at people living with disability. That life with disability is as much about having access to joy, intimacy and self determination as it is to lifts, bathrooms and social services.
Eddie is also co-founder and intellectual powerhouse of Evolve Initiative, a global start-up that seeks to influence public policy and popular culture by re-positioning disability as a site of social transformation and innovation.
Eddie has been named one of the 50 Most Influential Disabled People in the World by the Shaw Trust as well as one of the World's 30 Top Thinkers Under 30 by Pacific Standard Magazine, and is currently enrolled on a Master of Public Policy at the Blavatnik School and Somerville College at the University of Oxford.
Prior to joining Oxford, Eddie worked for Amnesty International as Head of the Africa youth engagement program. He has been profiled by Al Jazeera, Huffington Post, the World Economic Forum and the United Nations.
Eddie was born to a South African freedom fighter mother who fled from the Apartheid regime to Namibia under self-imposed exile.
Eddie's next dream is to go to space! He is in talks with both Richard Branson and fellow South African Elon Musk and will be raising funds towards this mission. He hopes to one day address the United Nations from space about Disability and Sustainable Development Goals. and the Access Gap
Eddie’s groundbreaking political protest begins in November 2017, ends in September 2018, and is to be documented in a feature-
length presentation film called, Space Art: Body As Protest.
He epitomises the phrase "Dream big!"